February 2018
After 3 surgeries trying to get and keep a new, functioning, intrathecal baclofen pump, we had to have everything removed due to infection in the pocket. This means Johnathan now will have to live on oral medications to maintain his severely high tone and prevent pain, dislocations, etc.
See, Johnathan was back in hospital for 3rd month in a row and had completed his 24th surgery. We knew this loss of the baclofen pump would be truly life changing for Johnathan, and that scared me...
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Posted by Tonni Brende.
